Ups and Downs

So the past couple of days have been up and down with Nate. We have felt fortunate that he has been better with his shots, but that hasn't been consistent. Sometimes he is fine and says it doesn't hurt, other times he really fights us. I'm getting nervous about going back to work, because there have only been a couple of times so far that one of us could have done it alone.

Another frustration is that we can't seem to get a good handle on his blood sugar levels. I need to be more patient with this, as it will take a long time to get the right dosage down, and it will always change as he grows and as his activity levels change. I just wish it were easier. I keep thinking every time I see his glucose level above 300 that he is going to lose a foot or go blind. I need more patience.

We did have a new experience. Last night my sister was getting her young women medallion (an inspiring and amazing story in and of itself, as she is confined to a wheelchair and cannot speak or control her body). The refreshments were frosted cupcakes. We had brought our "stuff" just in case this happened and he really wanted one, but didn't think he'd go for a shot just to eat a cupcake. Well, the cupcakes looked really good and he thought it was worth it. We searched books and I got my Blackberry out to search the web for nutrition information so that we could get the right dose of insulin, and we gave him a shot in the rear right in the church hallway. He did pretty good and was able to eat the cupcake and was happy. That was nice for us, as although it was a situation we had never thought we would encounter, it made things seem a little more normal, as we didn't have to keep him away from the food he wanted.

I think if I was a 3 year old, I'd take a needle in the bum to eat one of these bad boys:



So things are moving along. We met someone last night that told us his doctor is amazing - her son has worked with her for the past 4 years and they love her - so that was comforting. One day at a time...

Greg

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